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Moving out and away from your parents is a big step. Whether it's across town or a few states away, getting your own place takes some time getting used to. You're in charge of a lot of things now, from grocery shopping to cable bills and, most importantly, managing your CF care on your own. This may be a good time to transition to adult care. If you're moving far, finding a new CF care team may be needed. Here are some tips for living on your own1,2:

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  • Find a spot to keep all your equipment and medication (such as a corner of your living room, shelf, counter, easy to reach places, etc). Clear a shelf in your refrigerator for medication that needs to be stored there
  • Keep hand sanitizer in every room. Have antibacterial soap and wipes at every sink*
  • Keep paper towels and tissues on hand. Have extras stored in the hallway or linen closet*
  • Budgeting isn't fun, but almost everyone has to do it. Make a list of all your expenses, figure out what you have left over, and go from there. Sticking to a budget will pay off in the long run and help keep you on track with medical expenses*
  • Most importantly, go out and have fun. Mental health impacts physical health. Doing the things you love in your spare time will help keep you healthy and happy*

What I've learned from living on my own

Conor Reid is a 19-year-old college student with CF who recently completed his freshman year on campus. In between acing his exams and making new friends, Conor learned a thing or two about living on his own:

  • Stay organized. Have a binder, calendar, dry erase board, or mobile app with the following:
    • All your medications, doses, and when you should take them
    • Insurance contact information
    • Copies of health insurance cards
    • Names and contact information of your CF care team, local pharmacy, mail-order pharmacy, etc
  • Get into a routine. This will help you stay on track with treatments and taking medicine
  • If you're moving in with a roommate, be open with them about CF. Explain the treatments you do every day and answer any questions they may have. The more open you are, the more comfortable it will be
  • Clean! Clean! Clean! Staying on top of dishes and dusting isn't fun, but will help you stay healthy and keep your place germ-free

*Source: Siobhan Barry-Reid - Parent of a child with CF.

Source: Liz Christ - Parent of a child with CF.

References: 1. Living on your own. CF living website. http://www.cfliving.com/young-adults/living-with-cf/on-your-own.jsp. Accessed May 1, 2016. 2. 20 Tips for moving out for the first time. Paper Salt website. http://www.papersalt.com/blogs/news/6010552-20-tips-for-moving-out-for-the-first-time. Accessed May 1, 2016.

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