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- Find a spot to keep all your equipment and medication (such as a corner of your living room, shelf, counter, easy to reach places, etc). Clear a shelf in your refrigerator for medication that needs to be stored there
- Keep hand sanitizer in every room. Have antibacterial soap and wipes at every sink*
- Keep paper towels and tissues on hand. Have extras stored in the hallway or linen closet*
- Budgeting isn't fun, but almost everyone has to do it. Make a list of all your expenses, figure out what you have left over, and go from there. Sticking to a budget will pay off in the long run and help keep you on track with medical expenses*
- Most importantly, go out and have fun. Mental health impacts physical health. Doing the things you love in your spare time will help keep you healthy and happy*
What I've learned from living on my own†
Conor Reid is a 19-year-old college student with CF who recently completed his freshman year on campus. In between acing his exams and making new friends, Conor learned a thing or two about living on his own:
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Stay organized. Have a binder, calendar, dry erase board, or mobile app with the following:
- All your medications, doses, and when you should take them
- Insurance contact information
- Copies of health insurance cards
- Names and contact information of your CF care team, local pharmacy, mail-order pharmacy, etc
- Get into a routine. This will help you stay on track with treatments and taking medicine
- If you're moving in with a roommate, be open with them about CF. Explain the treatments you do every day and answer any questions they may have. The more open you are, the more comfortable it will be
- Clean! Clean! Clean! Staying on top of dishes and dusting isn't fun, but will help you stay healthy and keep your place germ-free
*Source: Siobhan Barry-Reid - Parent of a child with CF.
†Source: Liz Christ - Parent of a child with CF.
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